BookSerena Francesca Flocco, Hajar Habibi, Federica Dellafiore, Christina Sillman, editors.
Summary: The aim of this book is to provide one central resource for nurses within the adult spectrum of life-long congenital heart disease care who are seeking expert guidance for their practice, regardless of clinical setting. Over the past 50 years, advances in surgical techniques and medical therapies have drastically improved the number of congenital heart disease patients surviving into adulthood, with the result being that there are now more adults then children living with congenital heart disease. In the past three decades, recognition of this new cardiology subspecialty has given way to formalized programs, standards of care, and multidisciplinary expertise. Indeed Nursing care of adult patients with congenital heart disease (ACHD) is a relatively new medical subspecialty with limited knowledge and guidance available and also an important component of the multidisciplinary care team. Nursing care of the ACHD encompasses a holistic approach to the physical, psychological, social, and spiritual wellbeing of these unique individuals across their lifespan. Understanding the intricacies for the various heterogeneous defect types, the transition from pediatric to adult care, the unique educational and self-care needs, life-events such as pregnancy/reproduction, advanced heart failure, and end-of-life care helps prepare the nurse caring for the ACHD patient. Nurses as a first point of care for the ACHD patients play a pivotal role in the education and empowerment of the ACHD patient population and provide an invaluable role in the multidisciplinary team and with this guide nurses can feel confident in the quality of the care they provide. This book aims to introduce nursing focused care to wider audiences, nurses, medical technicians, and physicians who are involved in the management and treatment of ACHD patients. Improving care and the quality of life for adult congenital heart disease patients with a multidisciplinary team-based approach, including nursing care, should be a central goal for all ACHD programs.
Contents:
Foreword
Part 1 Epidemiology, anatomy and pathophysiology
1 Incidence of congenital heart disease and relevance in adulthood
2 Cardiac defects
Part 2 Transition from pediatric to adult care
3 Transitional care for young people
4 Advancing high value transitional care: the central role of nursing and its leadership
5 Building a transition program
Part 3 The role of the advance nurse practitioner in the care of ACHD patients in different care setting
6 The nursing care in the outpatient and hospital setting
7 The nursing care in the Cath Lab
8 The nursing care in critical setting
Part 4 Advanced heart failure in ACHD- 9 Management of acute heart failure
10 Mechanical circulatory support strategies
11 Heart Transplantation: the challenging journey of an ACHD
Part 5 Adult Congenital Heart Disease and pregnancy
12 Congenital heart diseases during pregnancy
13 The nursing care in critical setting Contraception, family planning and pregnancy management: the nurse specialists role
Part 6 Physical activity and sport
14 Rehabilitation's point break: changing for improving
15 Promotion of daily physical activity and exercise for adults with Congenital Heart Disease
Part 7 Patient Self-care and Nursing role for patients⁰́₉ education
16 Connecting dots for framing health: the self-care process
17 Patient education to self-management
18 The health engagement of adult congenital heart disease patients
19 Counseling can improve quality of life in Adult Congenital Heart Disease
Part 8 End-of-life care: nursing care in the final stage of life
20 Advance Care Planning and Advance Directives
Part 9 Coronavirus Disease 2019 (COVID⁰́₀19) pandemic implications in ACHD
21 COVID 19 and congenital heart disease.