BookNedim Hadžić, Marianne Samyn, editors.
Summary: This book discusses the clinical management of adolescents with liver disease bridging the gap between pediatric and adult hepatology patient management. Expert views on liver disease in adolescence are discussed and specific differences for this patient subset are highlighted and examined in depth. The reader will gain the specific knowledge required on pathophysiology and treatment, but also about additional aspects such as psychological difficulties and cultural differences including use of social media. Information is presented in a manner relevant to clinical practice, and is fully up-to-date in terms of development and integration of new communication technologies in the society. This book offers a fresh insight to this transitional period which will be a great benefit to hepatologists both in pediatric and adult setting. Edited by two experts in the field and authored by international experts in the area using a multidisciplinary approach, this book is a helpful tool in managing these complex patients and will help minimise their complication rates and improve outcomes by the end of their transition periods.
Contents:
Introduction
The impact of liver disease on adolescent development
a. Adolescent development
b. Impact of liver disease on adolescent development
i. Biological impact including growth and nutrition
ii. Psycho-social impact
Specific liver diseases
a. Biliary atresia
b. Alagille syndrome
c. Alpha 1 antitrypsin deficiency
d. Genetic cholestatic disorders
e. Autoimmune hepatitis and sclerosing cholangitis
f. Wilson disease
g. Non-alcoholic fatty liver disease
h. Portal hypertension
i. Cystic fibrosis
j. Sickle cell disease
Liver transplantation in adolescence
a. Listing for liver transplantation: criteria, timing and waitlist, Re-transplantation
b. Long-term patient and graft outcome
Challenges for adolescents and young adults with liver disease
a. Adherence to treatment
b. Mental health problems
c. Health related quality of life
d. Education and employment
e. Alcohol and recreational drugs
f. Fertility and pregnancy
Provision of youth friendly liver services beyond transition
a. Engaging young people: communication skills
b. Development of self-management skills
c. Peer support
d. Models of care for adolescents and young adults including transition from paediatric to adult care
What is it like to .
a. be young and have a liver disease?
b. be a parent of a young person with liver disease
c. look after a young person with liver disease.