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  • Book
    Rebecca Dresser.
    Summary: The research ethics system was created without the help of people who know what it is like to be a research subject. This is a serious omission. Experts have overlooked ethical issues that matter to subjects. Silent Partners moves subjects to the forefront, giving them a voice in research ethics.

    Contents:
    Subject perspectives : the missing element in research ethics
    Personal knowledge and study participation
    The everyday ethics of human research
    The hidden world of subjects : rule-breaking in clinical trials
    Participants as partners in genetic research
    Terminally ill patients and the right to try experimental drugs
    Embedded ethics in developing country research
    Research subjects as literary subjects
    How to hear subjects.
    Digital Access Oxford 2016