BookRebecca Dresser.
Summary: The research ethics system was created without the help of people who know what it is like to be a research subject. This is a serious omission. Experts have overlooked ethical issues that matter to subjects. Silent Partners moves subjects to the forefront, giving them a voice in research ethics.
Contents:
Subject perspectives : the missing element in research ethics
Personal knowledge and study participation
The everyday ethics of human research
The hidden world of subjects : rule-breaking in clinical trials
Participants as partners in genetic research
Terminally ill patients and the right to try experimental drugs
Embedded ethics in developing country research
Research subjects as literary subjects
How to hear subjects.