BookPei-Yun Sabrina Hsueh, Thomas Wetter, Xinxin Zhu, editors.
Summary: This book clarifies consumer and personal health informatics and their relevance to precision medicine and healthcare applications. Personal Health Informatics covers a broad definition of this emerging field, with individuals not simply consuming health but as active participants, researchers and designers in the healthcare ecosystem. The world of health informatics is constantly changing given the ever-increasing variety and volume of health data, care delivery models that shift from fee-for-service to value-based care, new entrants in the ecosystem and the evolving regulatory decision landscape. These changes have increased the importance of the role of patients in research studies for understanding work processes and activities, and the design and implementation of health information systems. Therefore, personal health informatics now provide research tools and protocols to engage within individual contexts when developing solutions, which can improve clinical practice, patient engagement and public health. Personal Health Informatics offers a snapshot of this emerging field, supported by the methodological, practical, legal and ethical perspectives of researchers and practitioners. In addition to being a research reader, this book provides pragmatic insights for practitioners in designing, implementing and evaluating personal health informatics in healthcare settings. It represents an excellent reader for students in all clinical disciplines and biomedical and health informatics to learn from the case studies provided in this emerging field.
Contents:
Intro
Foreword
Preface
Overview
Section I: The State-of-the-Art Novel Care Delivery Models
Section II: Methods for Translating Biomedical Research and Real-World Evidence into Patient-Centric Precision Health Application
Section III: Methods for Patient-Centric Design
Section IV: Ethics, Bias, Privacy, and Fairness
Acknowledgment
Contents
About the Editors and Contributors
About the Editors
About the Contributors
Part I: The State-of-the-Art Novel Care Delivery Models
Chapter 1: E-enabled Patient-Provider Communication in Context
Introduction Case Example #1: Development of the E-Health Care Model and Implementation in the PreClinic in Denmark
Evaluation of ECM Accomplishments
Case Example #2: Task-Sharing Mental Health Primary Care Delivery Model Via Smart Phones in Pacific Island Countries
The Study
Summary of Results
Challenges and Opportunities
Future Directions
Case Example #3: Colombia: Prenatal Care and Early Risk Identification
A Systems Model for E-Health Enabled Collaborative Care Delivery
Collaborative Care Delivery in the Time of COVID-19
Lessons on Collaborative Care Delivery from COVID-19 Discussion
References
Chapter 2: Direct Primary Care: A New Model for Patient-Centered Care
Primary Care, the Patient-Centered Medical Home, and Direct Primary Care
Primary Care
Patient Centered Medical Home
Direct Primary Care
Accreditation Process
Experience of the Patient and Provider
The Patient-Provider-Payer Shift
The Implications for DPC in Practice
Mixed Methods Research Methodology
Qualitative Methods
Quantitative Methods
Data Types
Data Quality
Results
Timely Access
Effectiveness
Patient-Centered
Efficiency/Affordability Conclusions, Implications, and Future Directions
References
Chapter 3: Smart Homes for Personal Health and Safety
Introduction
Sense4Safety: Using Smart Home Technology to Reduce Fall Risk
Falls and MCI as Significant Public Health Problems
Rationale for Passive In-Home Sensing
Use of Passive Monitoring Technology for Early Detection of Functional Changes
The Sense4Safety Intervention
Ethical Implications
Conclusion
References
Chapter 4: Health App by Prescription: The German Nation-Wide Model
Introduction
Overview
German Healthcare System Licensing and Marketing Authorization
Reimbursement by the Statutory Health Insurance (SHI)
New Digital Services in the German Healthcare System
Electronic Health Card and Personal Health Records (2000-2020)
Digital Health Applications (Since 2020)
First Experiences with DiGAs
Acceptance and Knowledge About DiGA Among German Healthcare Professionals and Citizens
DiGA as a New Business Model for Healthcare Start-ups and New Strategic Partnerships
Conclusion
Glossary
References