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  • Book
    Jane N.T. Sattoe, AnneLoes van Staa, Sander R. Hilberink, editors.
    Summary: This book focuses on young people (12-25 years old) growing up with a chronic somatic condition and/or physical disability, facing different challenges during their transition to adulthood and to adult healthcare services. Becoming an adult often proves extra challenging for them, because the adaptive tasks related to living with a chronic condition can clash with developmental milestones. Finding a good balance and integrating these tasks in daily life is also referred to as self-management. This book addresses self-management and empowerment of young people with chronic conditions as well as the Positive Youth Development concept. It elaborates on theories and approaches and offers a complete overview of self-management interventions for young people with chronic conditions, emphasizing on the tasks of medical, emotion and role management. It also elaborates on the roles and tasks of professionals, as well as the patient-provider relationship; the shifting roles between young people and their parents and the role of peer support. This book is unique in its broad view on self-management, i.e. it goes beyond medical management and focuses on young people achieving their maximum potential and a good quality of life. Furthermore, the book employs a positive youth development approach, focusing on empowerment and growth rather than problems or issues. It offers an overview of the state-of-the-art and evidence concerning self-management support for young people with various chronic conditions. As such it is of benefit for all healthcare professionals working in care for young people, but also for researchers interested in this topic.

    Contents:
    Self-Management of Young People with Chronic Conditions: An Overview and Introduction / AnneLoes van Staa, Sander R. Hilberink, and Jane N. T. Sattoe
    Positive Youth Development Approach to Support Life Skills of Young People with Chronic Conditions / Alison R. S. Manning, Jodie Neukirch Elliott, Samuel M. Brotkin, Gary Maslow, and McLean D. Pollock
    The Development of Self-Management in Young People with Chronic Conditions: A Transitional Process / Jane N. T. Sattoe and AnneLoes van Staa
    Exploring Components and Effects of Self-Management Interventions for Young People with Chronic Conditions / Marjolijn I. Bal, Jane N. T. Sattoe, Pepijn D. D. M. Roelofs, and AnneLoes van Staa
    Self-Management Support for Young People with Chronic Conditions: Roles and Views of Professionals / Janet E. McDonagh
    Transition to Adulthood: Shifting Roles Between Young People with Chronic Conditions and Their Parents / Karen L. Shaw, Gemma Heath, and Albert Farre
    Peer Support for Young People with Chronic Conditions / Susan Kirk and Linda J. Milnes
    Skills for Growing Up and Ready Steady Go: Practical Tools to Promote Life Skills in Youth with Chronic Conditions / Jane N. T. Sattoe, AnneLoes van Staa, Marij E. Roebroeck, and Sander R. Hilberink.
    Digital Access Springer 2021
  • Article
    Manuelidis EE, Gorgacz EJ, Manuelidis L.
    Proc Natl Acad Sci U S A. 1978 Jul;75(7):3432-6.
    Experimental Creutzfeldt-Jakob disease was serially transmitted from guinea pigs to Syrian hamsters with 100% incidence, morbidity, and mortality. All animals developed a subacute spongiform virus encephalopathy with neuronal destruction and concomitant astrocytic changes. In the first passage three different clinical syndromes were recorded, each with widely variant incubation times; these results suggested there may be different strains of the Creutzfeldt-Jakob agent, some of which may be partially separated when the agent is passaged from one species to another. Accumulations of neurofilaments in neuronal perikarya and processes and increased lipofuscin were suggestive of changes seen in senility and aging.
    Digital Access Access Options