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  • Book
    Karen M. Facey, Helle Ploug Hansen, Ann N.V. Single, editors.
    Summary: "If you're not involving patients, you're not doing HTA!"--Dr. Brian O'Rourke, President and CEO of CADTH, Chair of INAHTA This is the first book to offer a comprehensive guide to involving patients in health technology assessment (HTA). Defining patient involvement as patient participation in the HTA process and research into patient aspects, this book includes detailed explanations of approaches to participation and research, as well as case studies. Patient Involvement in HTA enables researchers, postgraduate students, HTA professionals and experts in the HTA community to study these complementary ways of taking account of patients' knowledge, experiences, needs and preferences. Part I includes chapters discussing the ethical rationale, terminology, patient-based evidence, participation and patient input. Part II sets out methodology including: Qualitative Evidence Synthesis, Discrete Choice Experiments, Analytical Hierarchy Processes, Ethnographic Fieldwork, Deliberative Methods, Social Media Analysis, Patient-Reported Outcome Measures, patients as collaborative research partners and evaluation. Part III contains 15 case studies setting out current activities by HTA bodies on five continents, health technology developers and patient organisations. Each part includes discussion chapters from leading experts in patient involvement. A final chapter reflects on the need to clearly define the goals for patient involvement within the context of the HTA to identify the optimal approach. With cohesive contributions from more than 80 authors from a variety of disciplines around the globe, it is hoped this book will serve as a catalyst for collaboration to further develop patient involvement to improve HTA.

    Contents:
    1. Health Technology Assessment
    2. Exploring Ethical Rationales
    3. Reflections on Terms, Goals and Organisation
    4. Patient-Based Evidence in HTA
    5. Developing the Mosaic of Patient Participation in HTA
    6. Patient Input to HTA
    7. Discussion
    Attending to Values and Quality of Patient Involvement in HTA
    8. Patients as Collaborative Partners in Clinical Research to Inform HTA
    9. Developing Patient-Reported and Relevant Outcome Measures
    10. Discrete Choice Experiments
    11. Analytic Hierarchy Process
    12. Ethnographic Fieldwork
    14. Deliberative Methods to Involve Patients in HTA
    15. Qualitative Evidence Synthesis
    16. Evaluation of Patient Involvement in HTA
    17. Discussion
    Making Sense of Patients' Perspectives, Experiences and Preferences in HTA
    18. Discussion
    Research to promote patient-based HTA
    19. Australia
    20. Brazil
    21. Canada
    22. Denmark
    23. England
    24. EUnetHTA
    Patients' Perspectives in the HTA Core Model®
    25. Germany
    26. Italy
    27. Scotland
    28. Sweden
    29. Taiwan
    30. USA
    Comparative Effectiveness Research
    31. Discussion of Approaches in Different Countries
    32. Discussion
    Patient Participation in HTA; Evidence of Real Change?
    33. Patient Involvement in Medicine Development and Assessment
    34. Medical Technologies: Involving Patients in Development and Assessment
    35. Role of Patient Organisations
    36. Discussion
    Perspective of an HTA Appraisal Committee Chair
    37. Reflections for Future Development.
    Digital Access Springer 2017