BookAlexandra Mancini, Jayne Price, Tara Kerr-Elliott, editors.
Summary: This textbook details the nursing care of babies with life limiting conditions and sets the context within the philosophy of internationally collaborative neonatal palliative care emphasising emotional and practical support for their families. Currently, increasing interest from nursing and medical fields regarding palliative care for babies in the antenatal and neonatal period is evident. This innovative and unique text provides experienced nurses and student nurses alike with realistic guidance in caring for babies with palliative care needs, alongside the crucial support for their families and identifies important strategies for professional self care. Nursing experts in this field collaborated to develop a reference book which supports holistic and integrated clinical practice. Parents experiences of what they consider helpful or not so helpful are interwoven throughout the chapter. There is currently no other textbook which offers the above information and guidance specifically for nurses and allied health professionals. As such this book will appeal to all nurses and health professionals working within the neonatal palliative care specialty in a global context.
Contents:
Foreword
Part I. Achieving Quality Nursing Practice in Neonatal Palliative Care
Chapter 1. Introduction to Neonatal Palliative Care
Chapter 2. Exploring the Concept on Neonatal Palliative Care
Chapter 3. Support for Staff: Building Resilience in Nurses
Chapter 4. The Importance of Effective Communication on the Neonatal Unit
Chapter 5. Spiritual, Cultural and Religious Care for the Baby and Family
Chapter 6. Ethical Concepts in Neonatal Palliative Care
Chapter 7. Legal Issues in Neonatal Palliative Care
Chapter 8. The Principles of Genetics within Neonatal Palliative Care
Chapter 9. Antenatal
Chapter 10. Care of Twins and Multiple Births and Support for the Family: a Detailed Background
Chapter 11. Care of Twins and Multiple Births and Support for the Family: the Butterfly Project
Chapter 12. The Decision-Making Process and the Role of the Neonatal Nurse
Chapter 13. Advance Care Planning
Chapter 14. Organ and Tissue Donation within Neonatal Palliative and End of Life Care
Chapter 15. Continuing Emotional and Practical Support for the Whole Family
Chapter 16. Fundamental Principles of Effective Symptom Management in Neonatal Palliative Care
Chapter 17. Collaboration between Neonatal Units and Childrens Hospices
Exploring Opportunities for Potentially Improving Care and Offering Choices
Chapter 18. Interdisciplinary Working in Neonatal Palliative Care
Chapter 19. Developing Knowledge and Competence in Neonatal Palliative Care Practice
Chapter 20. Care of the Baby after Death and Family, and Focus on Post Mortem Examination
Part II. Achieving Quality in Neonatal Palliative Care Internationally
Chapter 21. Introduction
Chapter 22. Australia
Chapter 23. Kuwait
Chapter 24. India
Chapter 25. Malaysia
Chapter 26. South Africa
Chapter 27. Ireland
Chapter 28. The Netherlands
Chapter 29. Germany
Chapter 30. Singapore
Chapter 31. Ukraine
Chapter 32. Argentina
Chapter 33. Italy
Chapter 34. Scotland
Chapter 35. France
Support Organisation
Index.