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  • Book
    [edited by] Ann F. Schrooten, Barry P. Markovitz.
    Summary: This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into how parents and physicians think, feel, and interact. The stories are grouped under four sections: Hope, Compassion, Communication, and Trust. Each section includes stories contributed by parents from all across the United States and by pediatricians practicing at many of the best children's hospitals throughout the country. The parents tell of interactions with physicians that had a significant impact on them and their child and offer context and insight that promote empathy and reflection. The physicians tell of interactions with patients and families that served as learning moments in their career and promote the humanization of medicine and show there is more to a physician beyond their scientific knowledge and white coat. The stories are edited by Barry P. Markovitz - a pediatrician specializing in critical care medicine who has been in practice for more than 20 years and by Ann F. Schrooten - the parent of a child born with a chronic complex condition who has more than 15 years of experience interacting with pediatric subspecialists and other healthcare professionals who cared for her son. The editors have written commentaries to the stories to provide an independent perspective on the events and messages conveyed and to encourage reflection, inquiry, and discussion. In addition to being a valuable resource for pediatricians, pediatric subspecialists, nurses and other healthcare professionals, the book will also appeal to families of children living with complex medical conditions because it shares physician encounters and behaviors many have experienced in the care of their own children. By giving a voice to both parents and physicians, the goal is to create a bridge to better understanding that can improve communication, minimize conflicts, and foster trust and compassion among physicians, patients, and families. .

    Contents:
    I. Compassion
    What Matters At The End
    I Didn't Have To Fix It
    No Wrong Decisions
    Reuniting Families
    Leading With Compassion
    Minute By Minute, Step By Step
    Seek Permission First
    A Sacred Relationship
    Kids Like These
    A Smile Worth Saving
    II. Trust
    Team Harlie
    Best Laid Plans
    If We Are Paying Attention
    Full Disclosure
    The Photograph
    Learning Together
    Altered Path
    The Befores And The Afters
    Not Everyone Is Born A Superhero
    Beyond The Numbers
    Shared Experience
    Tying The Threads Into A Bond
    III. Communication
    A Voice That Doesn't Use Words
    Brave The Difficult Conversation
    A Roadmap
    Teamwork
    Re-Learning To Listen
    Words Matter
    Trust Their Voice
    Knowing Your Family
    Advocacy Is Not Anger
    Where Is The Doctor?
    Failure to Communicate
    When A Patient and Family Forever Change Your World
    Respect: A Two-Way Street
    IV. Hope
    Persistence Of Hope: A Story In Two Acts
    Can I Offer You Advice?
    The Life Of The Party
    Every Single Second Worth It
    Partners In Hope
    Answers For Rosie
    We Treat Souls, Not Just Bodies
    Never Give Up
    The Sliver Of Sky
    The Many Voices of Hope
    Mothers Club
    Glossary.
    Digital Access Springer 2021
  • Article
    Janin-Mercier A, Saurat JH, Didierjean L.
    Arch Dermatol Res. 1978 Jul 28;262(2):235-8.
    Digital Access Access Options