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  • Book
    Julia Downing, editor.
    Summary: This manual enables individuals working in children's palliative care (CPC) globally to learn through engaging real-world cases. The aim is to provide a clinical case-based resource that is globally relevant and accessible to those working in CPC. Drawing on case histories from around the world that reflect key issues and elements of CPC, it provides a practical approach grounded in experience. It addresses multidisciplinary care in the management of children and their families; discusses cases from an international perspective, and shares examples from a variety of countries, utilising cases across a range of ages and conditions, demonstrating holistic care. It represents the first case-based manual on global CPC and is endorsed and promoted by the International Children's Palliative Care Network (ICPCN). Children's palliative care is a rapidly developing field, both in the UK and internationally. The provision of CPC varies considerably, with provision often being insufficient, and over 65% of countries having no recognised CPC service provision whatsoever. As such, while there are an estimated 21.6 million children who require palliative care, in many areas of the world, CPC is poor or non-existent, and children are treated like little adults without their distinctive needs being recognised or understood. There is also a dearth of literature on CPC, hence this clinical case-based manual fills a gap in the market, and is aimed at a global audience, making it a unique text in the field.

    Contents:
    Chapter 1. Introduction to children's palliative care and serious health related suffering, along with how to use this case based manual
    Chapter 2. The need for and gaps in provision of children's palliative care globally
    Chapter 3. Universal Health Coverage and Serious Health related Suffering (SHS)
    Chapter 4. Children's palliative care across a range of conditions, settings and resources
    Chapter 5. The importance of good holistic assessment
    Chapter 6. Communication to children and their families
    Chapter 7. Pain assessment and management
    Chapter 8. Respiratory care
    Chapter 9. Gastrointestinal symptoms
    Chapter 10. Fatigue
    Chapter 11. Nutritional support
    Chapter 12. Psychological care and distress
    Chapter 13. Spiritual care
    Chapter 14. Social and cultural support
    Chapter 15. End of life care
    Chapter 16. Supporting the family at the time of death
    Chapter 17. Anticipatory grief and bereavement support
    Chapter 18. Perinatal and neonatal palliative care
    Chapter 19. Supporting the adolescent and young adult
    Chapter 20. Managing ethical issues
    Chapter 21. Collaborative working and use of national, regional and international networks
    Chapter 22. Empowering the team through education
    Chapter 23. Integrating research into care
    Chapter 24. Conclusion
    Chapter 25. Index.
    Digital Access Springer 2020