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  • Book
    Kate A. Mazur, Stacey L. Berg, editors.
    Summary: This book identifies the various ethical challenges that arise in pediatric hematology/oncology and provides the necessary tools to overcome these challenges. Aiming to expand upon and strengthen providers' knowledge and experience in pediatric health care ethical issues, the text positions providers to be beneficial resources to faculty, staff, patients, and families within their institution. It presents a multidisciplinary approach to sound ethical practices that is necessary to effectively care for these patients and their families. The book reviews the principles of ethical decision-making, the unique difficulties in using children as research subjects, common ethical conundrums involved in providing end-of-life care, and general moralities of professional practice. Written by experts in their fields, Ethical Issues in Pediatric Hematology/Oncology is an innovative and valuable resource for clinicians, practitioners, and trainees who work in the field of pediatric hematology/oncology.

    Contents:
    Intro; Preface; Contents; Contributors; Part I: Introduction to Ethics in Pediatrics;
    Chapter 1: Ethics: A Historical Perspective; Respect for Autonomy; Beneficence and Non-maleficence; Justice; The State of Medical Ethics Today: Practical Applications; Pediatric-Related Ethics; Best Interest Standard of a Child; Informed Consent Process and Assent in Pediatrics; Past, Present, and Future Pediatric Ethical Challenges and Controversies; References;
    Chapter 2: Ethical Principles in the Practice of Medicine; Introduction; Defining Ethics; Approaches to Medical Ethics; The Problem of Pluralism The Four Principles of Biomedical Ethics "Doing Ethics": A Modest Approach; Legal and Professional Considerations in Ethics; The Four Boxes of Clinical Ethics; Ethics Consultation; Conclusion; References; Part II: The Ethics of Everyday Clinical Encounters;
    Chapter 3: Communicating Prognosis at Diagnosis and Relapse or Progression; Evidence for Honest Communication; Why Is Honest Communication Difficult?; Why Is Honest Communication Important?; Why Is Honest Communication Vital to Decision Making?; Are We Taking Away Hope?; Parental Decision Making: Other Considerations for the Clinician Consideration of Cultural Variations Nuts and Bolts of Honest Communication; Conveying Prognostic Information; Complications in Communication; Communicating with Children; Conclusion; References;
    Chapter 4: Managing Conflict When There's Disagreement in Care Between Medical Providers, Caregivers, and Patient; Introduction; Conflict Between Patients/Families and Professionals; Source of Conflict #1: Decisional Authority and the Best Interest Standard; Ethical Considerations; Source of Conflict #2: Decisional and Non-decisional Rights of Adolescent Patients; Ethical Considerations Source of Conflict #3: Problems in Alignment and Communication Among ProfessionalsEthical Considerations; Strategies for Conflict Resolution; Conflict Within Teams and Between Specialties; Source of Conflict #1: Goals of Care; Ethical Considerations; Sources of Conflict #2: Disagreement Over Treatment Options/Interventions; Ethical Considerations; Source of Conflict #3: Clarification and Coordination of Roles; Ethical Considerations; Strategies for Conflict Resolution; Conclusion; References;
    Chapter 5: Unique Considerations for Adolescents and Young Adults Adolescence Is a Unique Developmental Period; Informed Consent and Decision-Making in Young Adult and Pediatric Populations; Negotiating the Parent: Patient-Provider Triad; Special Circumstances: Emancipated and Mature Minors; Case-Based Learning: Potential Conflicts in AYA Care; Factors to Consider; Conclusion; References; Part III: Ethical Issues Surrounding Children in Research;
    Chapter 6: Ethics in Genetic and Genomic Research; Pediatric Oncology Genomic Studies; Ethical Issues in Pediatric Oncology Genomic Research; Informed Consent in Pediatric Genetic and Genomic Research.
    Digital Access Springer 2020