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  • Book
    Hedwig Weiss, Florian Prinz.
    Summary: Epidermolysis bullosa (EB) is the collective term for a heterogenous group of genetic skin disorders characterised by the formation of blisters and erosions on skin and mucous membranes.This book deals with early childhood motor and perceptual development, a particular challenge for children with extremely fragile skin. Going into functional treatment, it addresses rehabilitation of hands and feet in EB patients with fusions or contractures.The authors are occupational therapists with long-term experience in the management of EB patients. In an extraordinary holistic approach, they present a combination of paediatric and functional areas of treatment.Occupational therapy tools and interventions can help alleviate a number of accompanying complications and symptoms of EB, enhance self-care, and improve quality of life in general.Due to its practical approach, this book not only serves as a unique guide for doctors and health care professionals but is also comprehensible and useful for patients.

    Contents:
    Epidermolysis bullosa (EB), the condition
    Motor development in early childhood
    Treatment of the tactile, vestibular and proprioceptive perception
    Development of hand functions
    Graphomotor skills
    Independence in everyday life and provision of assistive devices
    Client-directed therapy using the COSA
    Rehabilitation of the hand
    Rehabilitation of the foot
    Conclusion.
    Digital Access Springer 2013