BookJan Helge Solbakk, Søren Holm, Bjørn Hofmann, editors.
Contents:
Pt. 1. Research biobanking : the traditional approach
Consent to biobank research : one size fits all? / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm
What no one knows cannot hurt you : the limits of informed consent in the emerging world of biobanking / Arthur L. Caplan
Users and uses of the biopolitics of consent : a study of DNA banks / Pascal Ducournau and Anne Cambon-Thomsen
Information rights on the edge of ignorance / Anne Maria Skrikerud
The dubious uniqueness of genetic information / Anne Maria Skrikerud
Duties and rights of biobank participants : principled autonomy, consent, voluntariness and privacy / Lars Øystein Ursin
Biobanking and disclosure of research results : addressing the tension between professional boundaries and moral intuition / Lynn G. Dressler
Biobanks and our common good / Erik Christensen
Trust, distrust and co-production : the relationship between research biobanks and donors / Pascal Ducournau and Roger Strand
Scientific citizenship, benefit, and protection in population-based research / Vilhj́almur Árnason
Pt. 2. Research Biobanking : towards a new conceptual approach
Mapping the language of research biobanking : an analogical approach / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm
The use of analogical reasoning in umbilical cord blood biobanking / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm
The Alexandria plan : creating libraries for human tissue research and therapeutic use / Laurie Zoloth
The art of biocollections / Anne Hambro Alnæs
The health dugnard : biobank participation as the solidary pursuit of the common good / Lars Øystein Ursin and Berge Solberg
Embodied gifting : reflections on the role of information in biobank recruitment / Klaus Hoeyer
Conscription to biobank research? / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm
Ownership rights in research biobanks : do we need a new king of 'biological property'? / Paula Lobato de Faria
Legal challenges and strategies in the regulation of research biobanking / Elisabeth Rynning
Annexation of life : the biopolitics of industrial biology / Jan Reinert Karlsen and Roger Strand
In the ruins of Babel : should biobank regulations be harmonized / Jan Reinert Karlsen, Jan Helge Solbak, and Roger Strand.