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  • Book
    Jan Helge Solbakk, Søren Holm, Bjørn Hofmann, editors.
    Contents:
    Pt. 1. Research biobanking : the traditional approach
    Consent to biobank research : one size fits all? / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm
    What no one knows cannot hurt you : the limits of informed consent in the emerging world of biobanking / Arthur L. Caplan
    Users and uses of the biopolitics of consent : a study of DNA banks / Pascal Ducournau and Anne Cambon-Thomsen
    Information rights on the edge of ignorance / Anne Maria Skrikerud
    The dubious uniqueness of genetic information / Anne Maria Skrikerud
    Duties and rights of biobank participants : principled autonomy, consent, voluntariness and privacy / Lars Øystein Ursin
    Biobanking and disclosure of research results : addressing the tension between professional boundaries and moral intuition / Lynn G. Dressler
    Biobanks and our common good / Erik Christensen
    Trust, distrust and co-production : the relationship between research biobanks and donors / Pascal Ducournau and Roger Strand
    Scientific citizenship, benefit, and protection in population-based research / Vilhj́almur Árnason
    Pt. 2. Research Biobanking : towards a new conceptual approach
    Mapping the language of research biobanking : an analogical approach / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm
    The use of analogical reasoning in umbilical cord blood biobanking / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm
    The Alexandria plan : creating libraries for human tissue research and therapeutic use / Laurie Zoloth
    The art of biocollections / Anne Hambro Alnæs
    The health dugnard : biobank participation as the solidary pursuit of the common good / Lars Øystein Ursin and Berge Solberg
    Embodied gifting : reflections on the role of information in biobank recruitment / Klaus Hoeyer
    Conscription to biobank research? / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm
    Ownership rights in research biobanks : do we need a new king of 'biological property'? / Paula Lobato de Faria
    Legal challenges and strategies in the regulation of research biobanking / Elisabeth Rynning
    Annexation of life : the biopolitics of industrial biology / Jan Reinert Karlsen and Roger Strand
    In the ruins of Babel : should biobank regulations be harmonized / Jan Reinert Karlsen, Jan Helge Solbak, and Roger Strand.
    Digital Access Springer 2009