Bookedited by Sahra Gibbon, Barbara Prainsack, Stephen Hilgartner, Janelle Lamoreaux.
Summary: The Handbook provides an essential resource at the interface of Genomics, Health and Society, and forms a crucial research tool for both new students and established scholars across biomedicine and social sciences. Building from and extending the first Routledge Handbook of Genetics and Society, the book offers a comprehensive introduction to pivotal themes within the field, an overview of the current state of the art knowledge on genomics, science and society, and an outline of emerging areas of research. Key themes addressed include the way genomic based DNA technologies have become incorporated into diverse arenas of clinical practice and research whilst also extending beyond the clinic; the role of genomics in contemporary 'bioeconomies'; how challenges in the governance of medical genomics can both reconfigure and stabilise regulatory processes and jurisdictional boundaries; how questions of diversity and justice are situated across different national and transnational terrains of genomic research; and how genomics informs - and is shaped by - developments in fields such as epigenetics, synthetic biology, stem cell, microbial and animal model research. Presenting cutting edge research from leading social science scholars, the Handbook provides a unique and important contribution to the field. It brings a rich and varied cross disciplinary social science perspective that engages with both the history and contemporary context of genomics and 'post-genomics', and considers the now global and transnational terrain in which these developments are unfolding.
Contents:
1
Introduction: Genomics, Health and Society, Sahra Gibbon, Barbara Prainsack, Stephen Hilgartner and Janelle Lamoreaux
-- Section One: Genomic/DNA-based Technologies in the Clinic and Beyond
-- 2 Introduction, Sabina Leonelli
-- 3 Biomedicalisation in the Postgenomic Age, Catherine Bliss
-- 4 Genomics and Big Data in Biomedicine, Sabina Leonelli and Niccolo Tempini
-- 5 Mainstreaming Genomics and Personal Genetic Testing, Susan Kelly, Sally Wyatt and Anna Harris
-- 6 Bringing Genetics into the Clinic: The Evolution of Genetic Testing and Counselling, Ilana Lowy
-- 7 From Quality Control to Informed Choice: Understanding "Good Births" and Prenatal Genetic Testing in Contemporary Urban China, Jianfeng Zhu and Dong Dong
-- Section Two: Genomic Technologies in the Bioeconomy
-- 8 Introduction, Claire Marris
-- 9 Limits to Biocapital, Margaret Chiappetta and Kean Birch
-- 10 Gendered Bioeconomies, Janelle Lamoreaux
-- 11 Genomic Hope: Promise in the Bioeconomy, Paul Martin
-- 12 Neoliberalism on Drugs: Genomics and the Political Economy of Medicine, Edward Nik-Khah
-- 13 The Value of the Imagined Biological in Policy and Society: Somaticizing and Economising British Subject(ivitie)s, Martyn Pickersgill
-- 14 Responsible Research and Innovation (RRI), Ulrike Felt
-- Section Three: Current Challenges in the Governance of Medical Genomics
-- 15 Introduction, Stephen Hilgartner
-- 16 The Human Genome Project and the Legacy of its Ethics Programs, Stephen Hilgartner
-- 17 Patenting, Shobita Parthasarathy
-- 18 Genomic Platforms and Clinical Research, Alberto Cambrosio, Etienne Vignola-Gagn, Nicole Nelson, Peter Keating, Pascale Bourret
-- 19 Diagnostics, Stuart Hogarth
-- 20 Collection and Protection of Personal Health Data, Edward Dove
-- 21 In CRISPRs World: Genome Editing and the Politics of Global Science, Ben Hurlbut
-- Section Four: Diversity and Justice
-- 22 Introduction, Sahra Gibbon and Barbara Prainsack
-- 23 Disability and the Challenge of Genomics, Jackie Lee Scully
-- 24 Eugenics and Enhancement in Contemporary Genomics, Silvia Camporesi and Giulia Cavaliere
-- 25 Genomics and Insurance, Ine van Hoyweghen
-- 26 Power Asymmetries, Participation, and the Idea of Personalised Medicine, Barbara Prainsack
-- 27 Excavating Difference: Race in Genomic Medicine, Sandra Lee
-- 28 Genomics in Emerging and Developing Economies, Duana Fullwileyand Sahra Gibbon
-- Section Five: Crossing Boundaries
-- 29 Introduction, Janelle Lamoreaux
-- 30 Epigenetics, Margaret Lock
-- 31 Environmental Epigenetics and Suicide Risk at a Molecular Scale, Stephanie Lloyd and Eugene Raikhel
-- 32 Stem Cells, Global Cells, Local Cultures, Jennifer Liu
-- 33 Co-producing Animal Models and Genetic Science, Carrie Friese
-- 34 Making Microbiomes, Amber Benezra
-- 35 Behavior Genetics: Boundary Crossings and Epistemic Cultures, Nicole Nelson and Aaron Panofsky
-- 36 Synthetic Biology, Jane Calvert, Dominic Berry and Deborah Scott.